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  • We are not despite

    Recently, I was talking to a friend who’s had a hard year. As the conversation flowed, I started thinking about the way we talk about ourselves when we’re dealing with difficult things. We say things like, “isn’t it great I could handle that schedule despite all the stress?” and “isn’t it so cool she got…

    We are not despite
  • This isn’t my battle

    I hate when people refer to having a chronic illness as “fighting.” I hate when people tell me they are impressed with how “strong” I am. I hate when people tell me I “inspire them” just because I have a disease. I also hate orange gummy bears but that’s not important right now. After reading…

    This isn’t my battle
  • I feel like I should be used to it by now

    When I woke up at 11:41 on July 4th, my back was hurting. It was the kind of ache you feel the day after you work out too hard or go on a really long walk, or, in my case, just exist in a body that likes to hurt for no reason. I sat up,…

    I feel like I should be used to it by now
  • Books

    I’m sure it comes as no surprise to all of you that I like to read. I mean, if I’m going to ramble on and on here, it’s only fair that I read other peoples’ ramblings from time to time too. Ever since I was a little kid, I’ve loved books. In third grade, I…

    Books
  • My shoes won’t fit you

    And no, it’s not because they’re a kids size 4. Think about the first time you were told to put yourself in someone else’s shoes. You were probably no more than 5. At the time, such a concept likely made no sense, but as you got older, you probably had an eventual “aha” moment when…

  • 252,000,001

    When you type the words “chronic illness college” into google, you get 252,000,000 results in 0.58 seconds. The first title to pop up is “Guide For College Students Living with a Chronic Condition,” followed by “28 ‘Hacks’ for Going to College With Chronic Illness,” “12 Things I Wish I’d Known Before Going to College with…

  • Do something scary today

    A few days ago, I made myself an appointment with a new doctor over the phone. It took all of 10 minutes and wasn’t even that hard. But if you told me last year that I would have done something like that, I wouldn’t have believed you. I know it sounds ridiculous. A phone call,…

  • Ask me

    When I was 10, I made my mom buy me a shirt that said “ask me about my Crohn’s Disease” because my Camp Oasis counselor had one and I thought it was just the *coolest.* I really only wore it around the house and it sort of became a joke to the rest of my…

  • 4 Words

    I’m thinking about you. Yes, you. The person reading this right now. I’m thinking about you. I’m thinking about you, and I hope you’re doing well. But I know that might not be the case, especially now. You may be thinking “you don’t even know me” or “you have no idea how I feel,” and…

  • New Years Intentions

    I’m just gonna say it: I hate new years resolutions. I think they’re the worst. And no, I’m not just bitter about my failed attempt to totally transform my life in 2014 (hey, I was only 11, give me a break!). But I don’t hate them for what they are- goals are good things. I…