IBD A-wear-ness Campaign

                      

Did you know that May is IBD awareness month? IBD (Inflammatory Bowel Disease) is a group of two incurable illnesses (Crohn’s disease and Ulcerative Colitis)  that affect millions of people every year. While research has come so far in treating and managing these conditions, there is still so much progress to be made.

And that is why I need your help! You have the power to spread IBD awareness by purchasing one of these shirts (CLICK HERE!). All proceeds collected will be sent to the Crohn’s and Colitis Foundation to fund much-needed research to find a cure for IBD. 

Show support for IBD not just in May, but every day of the year by wearing one of these shirts. I designed them myself, so let me know what you think! 

If you are unable to purchase a shirt, don’t worry about it! There are so many ways to show support for IBD through volunteering or simply educating those around you about these conditions. 

The campaign will last until June 4, so pass it along before time runs out! I would love to reach my goal of selling at least 50 shirts. 

If you have any questions, leave a comment below or contact me at livinthecrohnslife.blog@gmail.com

Thank you for your support! 

5 apps to get your life together(ish)

Image result for appsDisclaimer: I am not being sponsored by any of the apps below to promote their product. These are just some apps I find helpful and I hope you do too! I also realize that there are probably thousands of apps out there that do the same thing as the ones I mention but these are just my top 5 and they may not be everyone’s top 5. 

I know you are probably thinking, “5 apps? How much storage does she think I have?” But the thing is, you probably don’t need all 5. If you don’t take medicine, you don’t need the medication tracker. And, these apps aren’t going to transform you into some super organized, perfect person who never forgets about anything. But hopefully, they will make it easier for you to be a little more on top of your game.  Continue reading

Plans are just plans

Yesterday was May 19th. It was also World IBD Day- a day when people try to show a little extra support for Crohn’s and Colitis. A day to reflect on how far research has come since last year, and how much farther we still have to go. But if World IBD Day was yesterday, why didn’t I write anything about the most important day for IBD awareness?!? Continue reading

Everybody has something

When we are struggling, it’s easy to be jealous of other people. We think of all the things we have to deal with that they don’t, and we want to be them. But what we don’t realize is that there is no perfect person. No one is living a life without some sort of suffering. Everyone has something going on that they wish would disappear.  Continue reading

Digesting The Spoon Theory

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The Spoon Theory. Maybe you’ve heard of it before. Maybe you’re wondering what crazy person would form a theory about spoons. Seriously, spoons? Salad tongs are so much more interesting. 

So what is the Spoon Theory, anyway? And why am I telling you about it? 

Sorry to disappoint you, but the Spoon Theory is not some secret silverware code. It really doesn’t have to do with spoons at all. 

It is simply a way for people with chronic illnesses to describe their complicated energy levels to “normal” people who are curious. It’s a metaphor that makes a lot more sense than anything I could think of. And if you ask me, it’s accurate. Well, kind of. 

But before I slam you in the face with my own opinion about the Spoon Theory, let me first explain how it works. It’s a pretty simple idea: everyone’s energy is measured in spoons. And every activity you do requires you to use some of those spoons. 

Now, let’s say that “normal” people who don’t have chronic illnesses and have “normal” energy levels start each day with around 25 spoons. Everything you do throughout the day costs spoons. Getting out of bed, brushing your teeth, getting dressed, taking a shower, going to school, eating lunch, doing homework, exercising, going out, shopping, it all costs spoons. Of course, some things cost more spoons than others. Going to work might cost around 4 spoons while taking a shower is only 1. But with 25 spoons, most people can comfortably get through the day and do everything they need to do. 

However, people with chronic illnesses may only start each day with 10 or 15 or 20 spoons. The energy we have isn’t enough to get through the day. We have to pick and choose. If we take a shower, go to school, go to sports practice, and eat dinner, we might not have any spoons left to call a friend. And on top of that, managing symptoms and medications take some of our spoons, too. Although we can borrow spoons from tomorrow, if we take 3 extra spoons to go to the mall with some friends, we might only have 8 spoons the next day. 

The point of this analogy is to show that living with a chronic illness is exhausting. We automatically start every day with less energy. Or in some cases, we may start with 25 spoons, but every activity we do takes more out of us than it would from a “normal” person. On some days, simple tasks like getting out of bed or eating a meal may take 3 spoons. And if we aren’t feeling well, we might only have room to do a few more things before we crash.

The Spoon Theory is a simple way to explain a not so simple idea. 

Because of our lack of spoons, people with chronic illnesses often feel like we are lazy, or slow, or not trying hard enough since we don’t have the spoons to pay for what we want to do. And it sucks when you want to, and often times need to, do things when you don’t have the energy to do them. 

Now you may be wondering why when I introduced the Spoon Theory I said that it is only”kind of” accurate. Thinking of energy in terms of spoons is helpful when you want to explain chronic illness in simple terms. But using this metaphor implies that the chronically ill have a sense of control. It gives us and other people the idea that by using simple math, we can calculate our spoons and activities and create a schedule that aligns with how much energy we have.

But this isn’t true. Most of us don’t have control. Some days, I might wake up with more spoons than most of my friends. Say around 30. But because of the nature of IBD, those spoons can disappear in an instant for no apparent reason and I’ll have 8 left in a snap. A shower may have required 1 spoon yesterday, but today, it could take 5. And I have no way of knowing or changing that reality. I might ask a friend for plans when I have 15 spoons. But when they text back 30 minutes later I might only have 4. Now, I could choose to use those 4 and borrow a few spoons from tomorrow, but I don’t know how many spoons I will wake up with each day. So if I only have 4 but end up borrowing 3, I could be stuck with only 5 tomorrow. And I could take 5 more from the next day, but when you take energy from the next day, and the next day, and the next day, eventually you don’t have any left to take. And then you have to spend energy recovering from using your energy. It’s a vicious cycle. 

But, here’s the thing: just because my spoons are limited doesn’t mean my life is. I probably won’t become a pro athlete. I probably won’t write a book in 8 weeks. I probably won’t finish things the fastest. I probably won’t have plans with my friends as often as I want to. But even though I don’t have the energy to do all of the things I want to doesn’t mean I won’t do some of them. And it doesn’t mean I will give up.

The Spoon Theory is great. It’s clear, it’s helpful, and it gives me something to say when people ask me about my illness. But it’s an idealized version of my life. It doesn’t account for pain. It doesn’t account for good days, bad days, and confusing days where I don’t know if I should go on a run or take a nap. But that’s because all of those things are out of my control. I can’t control my energy and I can’t control my disease. And niether can a whole bunch of spoons 😂.

In a sense, the Spoon Theory helps me and other people understand this lack of control. It helps explain just how much energy a shower, or a meal, or a phone call takes out of us to people who don’t experience fatigue. It visualizes the process we go through when deciding if something is worth our energy. And it reminds us that we aren’t able to do everything every day– and that’s ok

So, even though the Spoon Theory gives me that tiny bit of false hope that equation to plan out my energy use for the week, I am incredibly thankful for it and other metaphors like it. They are the reason why other people can understand and support people like me. They make sense of symptoms that I can’t explain myself. And yeah, I admit they may not be perfect. But neither are we. 

When the going gets tough

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“When the going gets tough, get tougher.”

You’ve probably heard this before. When you’re working out at the gym. Going on a really long run. Studying for a big test. Feeling really stressed out about everything going on around you. 

I think these words were designed to be a source of motivation to push through whatever struggles you are facing. But for me, they fall short.  Continue reading

Some things are nobody’s fault

you-151415_640People like to know all the answers. They like knowing the who, the what, the where, the when, the why, and the how about everything. They like when things make sense. 

And it’s fine to like these things. It’s fine to like knowing the answers, the who’s, the what’s, the where’s, the when’s, they why’s and the how’s. It’s fine to like it when everything makes sense. 

But the problem is, that as people, most of us get so used to having these things that we begin to expect them. Anytime something happens, we expect an explanation. An excuse. Some strand of logic that will make us understand exactly what’s happening and why.  Continue reading

To the people that can’t see me: understanding invisible illness

6025311011_fd55d6aa1b_bHi!

For those of you who don’t know, my name is Becky. I am 15 years old. I’m a freshman in high school. I play soccer. I like to write. And eat Chipotle. 

When people look at me, they see a teenager. A student. A friend. A sister. A daughter. A cousin. That annoying person who color codes their history notes. (Don’t worry; that was just a phase). 

But, none of those people really see me

Continue reading

New year, same disease.

Happy New Year, everyone! 

I expected to get this post up by January 1st (I didn’t). I expected to write about starting a new year with new goals in mind (I did…kinda?). A blank slate. A fresh start. 

But as I was writing, I realized that we can’t just put the past behind us and start each new year from ground zero. Sure, we can choose to let go of things we’re holding on to. Friends. Jobs. Ugly sweaters. Gum we’ve been chewing for way to long. Things that we control. But what about the things that hold on to us? What about the things that, no matter how hard we try and let go of, will never be gone? Snot. Clingy people. Feelings. And chronic illness. Things we can’t control. 
Continue reading